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There is a hidden epidemic - millions of people living with perplexing illnesses that elude definition and treatment. Undiagnosed is a documentary about what it is like to exist in a constant state of unknown, struggling with undiagnosed illnesses and rare diseases, and existing as medical refugees in a modern health care system. The film aspires to bring objectivity to this controversial and timely subject by interviewing doctors, medical administrators, and people, both children and adults, who have the misfortune of suffering without a diagnosis. Research and professional opinions combine with gripping stories into an incredible narrative that showcases the strength of the human spirit and the need for change in our medical system.

Health Care Professionals Appearing on Trailer
(in order of appearance):

Jennifer Friedman, M.D.,
Clinical Professor Neurosciences & Pediatrics,
UCSD/Rady Children’s Hospital

Gurpreet Dhaliwal, M.D.,
Associate Professor of Clinical Medicine,
University of California San Francisco

Jonathan Hoffman, Ph.D., ABPP,
Clinical Director & Co-Founder,
NeuroBehavioral Institute

William Gahl, M.D., Ph.D.,
Clinical Director, National Human Genome Research Institute,
Director, NIH Undiagnosed Diseases Program

Becky Dennis,
Patient Advocate & Author,
Brain Wreck

David Newman-Toker, M.D. Ph.D.,
Associate Professor of Neurology & Otolaryngology,
The Johns Hopkins University School of Medicine

Vicki Whiting, Ph.D.,
Patient Advocate & Author,
In Pain We Trust

Gordon Schiff, M.D.,
Associate Director, Center for Patient Safety Research, Brigham and Women’s Hospital,
Associate Professor of Medicine, Harvard Medical School

Katia Moritz, Ph.D., ABPP,
Clinical Director & Co-Founder,
NeuroBehavioral Institute

Amy Goldstein, M.D.,
Director, Neurogenetics & Metabolism,
Children’s Hospital of Pittsburgh

Charles Mohan Jr.,
Chief Executive Officer,
United Mitochondrial Disease Foundation

Edward B. Clark, M.D.,
Chair, Department of Pediatrics,
University of Utah School of Medicine

Disclaimer: Undiagnosed: Medical Refugees includes footage from the National Institutes of Health (NIH). The NIH does not endorse the producer or its products or services.

1st Undiagnosed Family Camp

In March 2014 the Undiagnosed documentary organized the first ever Undiagnosed Family Camp at The National Ability Center in Park City, Utah. It was an incredible weekend- 5 families from all over the country came together to learn, share and play. Everyday was jam-packed with fun, adaptive activities for the entire family: skiing, horseback riding, rock climbing, swimming at a hot spring inside of a crater, campfire sing-a-longs, and bowling- never a dull moment! And the best part, aside from all of the great smiles, was that these families were able to get to know other families just like them. No explanations needed, they understood each other's situation, and the siblings were able to meet other siblings who had an undiagnosed brother or sister- most of them had never met anyone like them before!

A great step towards building an undiagnosed community. The memories made this weekend will be with these families for a lifetime! They were truly touched by coming to beautiful Utah, being able to do activities they never thought possible, and being able to commune with other undiagnosed families.


© 2016 Undiagnosed Films LLC